Getting an Private Autism Diagnosis
A private diagnosis for autism can be a much quicker process, but it does come with a financial cost to it.
One pitfall that we urge you to avoid is that if you wish to pursue a diagnosis, do not spend more money than you have to. There are experienced specialists, working within the UK, that charge fairer rates who offer incredible support and can help expedite this process.
After receiving your diagnosis, we advise making an appointment with your GP so that they can amend your medical records and signpost you to the appropriate support services
The private autism diagnosis pathway
To get a private diagnosis for autism, for either an adult or child, you can begin by researching and contacting a private clinic or a specialist such as a clinical psychologist, psychiatrist, or neurodevelopmental specialist with experience in autism spectrum disorder (ASD).
You’ll need to arrange an initial consultation, during which the professional will assess your needs and explain the diagnostic process to you.
This process may involve multiple sessions that include interviews, questionnaires, and possibly observations of your behavior. You may also be asked to complete standardised tests, you can have a look at some examples of these on our diagnosis page, in the self assessment section.
During your evaluation, you can expect questions about your developmental history, including childhood behavior, social interactions, sensory sensitivities, and communication style and challenges. You might be asked how you cope with change, manage emotions, or handle specific social situations.
If you’re an adult, they’ll likely explore how your symptoms have impacted your education, work, and relationships.
Fees for a private autism assessment for an adult varies and we urge you to understand all the likely costs involved before you move forward with your chosen specialist or clinic. A ballpark estimate for your assessment in the UK is between £1900 to £3500 or more.
Rejection of your private diagnosis
There is no legal reason for the NHS or your local authority to reject a private diagnosis as long as it was provided by a suitably qualified professional.
However, they may not back down on their decision, and you may have to look elsewhere for support. If you decide to make a complaint, we recommend contacting the necessary service and asking the reason for not accepting your private diagnosis. Mention that you believe that there is no legal standing for your diagnosis not to be recognised, and you want to make a formal complaint. After making a formal complaint if your diagnosis is still not recognised, we advise you contact the Parliamentary Health Service Ombudsman.
“My health, physical and mental, was at an all-time low point, and I had just been told that my diagnostic pathway was likely going to take 2-4 years before I had an answer. Personally, I knew I couldn’t survive that long. Quite frankly, for what actually happens during the process, nobody should have to wait that long!
I scoured the UK for an option that was more suitable for my situation, and I came across a lot of organisations that were quoting me thousands of pounds for a diagnosis! Disgusting, considering that the stats show just 16% of ASC individuals are in full-time employment.
Eventually, I found Sara Heath at Autonomy+ Shropshire. I still paid for this service, but when compared to the other quotes I had received, it made sense! Sara made the process smooth, as comfortable as possible and incredibly professional.
From contacting her to receiving my official diagnosis took just 10 days! I was then able to access support, something I was told I would have to wait years for! I am so grateful to Sara for the incredible work she does, and I will always be thankful for her. She helped completely change my life for the better.”
Links to possible providers of a private autism diagnosis
Please note: As an organisation Enfold cannot recommend or endorse any particular private diagnosis organisations.
